Simpson-Golabi-Behmel Syndrome, or SGBS, is extraordinarily rare. It’s a genetic disorder that occurs so infrequently that many physicians complete their entire careers without ever treating a single patient who has it. The condition affects the body’s growth regulation in profound ways, causing accelerated physical development that can lead to numerous health complications.
For Zach, the syndrome meant his body was growing at an alarming pace. According to reports, he was gaining roughly two and a half pounds every two weeks. At the same time, he was growing nearly an inch during that same period. While other toddlers were slowly adding ounces and fractions of inches, Zach’s body was expanding at a rate that frightened everyone who cared about him.
